Sunday, January 4, 2009

Prayer Request...

I have to ask for everyone's prayers and thoughts for Monday, Jan 5th. Madeline has her infant PFT test. She has this pulmonary function test every 6 months, and will for the rest of her life...or until they find a cure for CF! Since she's too little to follow commands she has to be sedated and placed in an aquarium-like contraption for the test. A vest is put around her body that literally squeezes the air in and out of her lungs. This test can measure how well she is moving air, basically. To see a video of the test (the video's about 4 mns) click HERE and then click on the tab on the left that says "Watch an infant study". It looks a little scary but it's not that bad. The hard part is the prep for the test. In order for the mild sedative to work, the child must fall asleep on her own. So, we have to keep her up late the night before and get her up early the day of the test. Not easy! And, since she's being sedated, she's not allowed any food 6 hours before the test. Again, not easy. The test is at Fairview University Hospital which is about an hour from our house. Madi loves to sleep in the car so one of us has to sit in back with her to keep her awake for the trip. Oh, boy I wonder who will get that job? Well, I am tired now and want to go to bed. I'll be up at the crack of dawn to get my daughter up. She is not going to be a happy camper tomorrow. So our prayer request is this...Keep us strong as parents to do the right thing for our daughter no matter how hard, and for the test to show that Madi's lungs are functioning normally. Thanks.

1 comment:

Katy said...

We're thinking about the three of you today, all will go well.